{"id":39653,"date":"2020-11-22T07:50:00","date_gmt":"2020-11-22T06:50:00","guid":{"rendered":"https:\/\/4000mil.se\/?p=39653"},"modified":"2020-11-22T08:14:10","modified_gmt":"2020-11-22T07:14:10","slug":"hjarntrotthet-efter-stroke-att-leva-med","status":"publish","type":"post","link":"https:\/\/4000mil.se\/index.php\/hjarntrotthet-efter-stroke-att-leva-med\/","title":{"rendered":"Hj\u00e4rntr\u00f6tthet efter stroke – vad inneb\u00e4r det och hur \u00e4r det att leva med?"},"content":{"rendered":"

– Vilken tur att du inte drabbats av n\u00e5gon hj\u00e4rntr\u00f6tthet efter stroken, minns jag att vi sa till varandra ganska tidigt efter stroken.<\/p>\n

Naivt, dumdristigt eller bara i okunskap. F\u00f6r vi trodde ju d\u00e5 att hj\u00e4rntr\u00f6tthet det var helt enkelt att bli uttr\u00f6ttad av ljud och intryck, att inte orka g\u00e5 p\u00e5 fest, eller g\u00e5 p\u00e5 stan utan att beh\u00f6va avbryta och \u00e5ka hem och l\u00e4gga sig p\u00e5 s\u00e4ngen.
\nOch visst, absolut \u00e4r det tur att Christofer inte drabbats av hj\u00e4rntr\u00f6tthet p\u00e5 det viset. Men insikten har kommit gradvis f\u00f6r oss att hj\u00e4rntr\u00f6tthet efter stroke, det kan ocks\u00e5 vara s\u00e5 m\u00e5nga andra saker. S\u00e5 h\u00e4r har Christofer drabbats. En liten summering, s\u00e5 h\u00e4r p\u00e5 2-\u00e5rsdagen av stroken<\/a>.<\/p>\n

\"\"<\/p>\n

Stort s\u00f6mnbehov<\/h2>\n

Det som \u00e4r mest p\u00e5tagligt f\u00f6r familjen \u00e4r kanske detta med s\u00f6mnbehovet. F\u00f6rsta \u00e5ret efter stroken var Christofers s\u00f6mnbehov 11-12 timmar per dygn. Nu 2 \u00e5r efter \u00e4r han kanske nere i 9-10 timmar per dygn. Mer hanterligt, men \u00e4nd\u00e5 p\u00e5tagligt mer \u00e4n genomsnittsm\u00e4nniskan. Tid som m\u00e5ste avs\u00e4ttas varje dag.<\/p>\n

Ork att delta i samtal och diskussion<\/h2>\n

Jag kan m\u00e4rka att Christofer tystnar ibland, men mest m\u00e4rker han kanske av det sj\u00e4lv. Orken att delta i samtal och diskussioner har minskat p\u00e5tagligt. Han sitter g\u00e4rna med och lyssnar, men kan k\u00e4nna, att hinna processa det som s\u00e4gs, att t\u00e4nka ut en egen \u00e5sikt eller erfarenhet i \u00e4mnet och att sedan formulera detta i ord. Det tar lite f\u00f6r mycket energi i anspr\u00e5k. D\u00e4rf\u00f6r blir det l\u00e4tt s\u00e5 nu f\u00f6r tiden att Christofer i st\u00e4llet f\u00f6rblir tyst medan andra pratar.<\/p>\n

\"hj\u00e4rntr\u00f6tthet<\/p>\n

Stresst\u00e5lighet<\/h2>\n

Stresst\u00e5ligheten har p\u00e5verkats p\u00e5 ett v\u00e4ldigt p\u00e5tagligt s\u00e4tt. Christofer har dels sv\u00e5rt att ha flera bollar i luften samtidigt. Sen reagerar han v\u00e4ldigt starkt p\u00e5 stressituationer som p\u00e5minner honom om hur livet var innan stroken. Den typ av stress som var vardag d\u00e5.
\nJag m\u00e4rker det p\u00e5 att han kan bli kort i tonen p\u00e5 ett s\u00e4tt som aldrig h\u00e4nde f\u00f6rut.<\/p>\n

Ork att koncentrera sig p\u00e5 uppgift<\/h2>\n

Detta \u00e4r ett st\u00e4ndigt strokeproblem. Orken att stanna kvar koncentrerad i en uppgift s\u00e5 l\u00e4nge som det kr\u00e4vs. Att packa en v\u00e4ska till exempel. D\u00e4r h\u00e4nder det l\u00e4tt att saker gl\u00f6ms bort. \u00c4ven viktiga saker som egna mediciner eller andringsapparaten.<\/p>\n

\"hj\u00e4rntr\u00f6tthet<\/p>\n

Initiativf\u00f6rm\u00e5ga<\/h2>\n

Initiativf\u00f6rm\u00e5gan f\u00f6rsvann helt efter de tv\u00e5 mindre ok\u00e4nda strokarna<\/a> som Christofer fick 2016. Vi funderade ju mycket b\u00e5da tv\u00e5 \u00f6ver detta m\u00e4rkliga och det gick s\u00e5 l\u00e5ngt att Christofer trodde att han hade Alzheimers och s\u00f6kte l\u00e4karhj\u00e4lp. Diagnosen d\u00e5 blev ”Du \u00e4r nog lite utbr\u00e4nd”<\/em>.<\/p>\n

Nu sedan den senaste stroken 2018, d\u00e5 de tidigare sm\u00e5 strokarna hittades, har vi ju f\u00e5tt en f\u00f6rklaring. Det har i och med det blivit l\u00e4ttare f\u00f6r Christofer att sj\u00e4lv aktivt jobba med problemet, nu n\u00e4r han vet orsaken. Jag tycker att han gjort stora framsteg, men fortfarande kan det g\u00e5 tr\u00f6gt att f\u00e5 saker som han sj\u00e4lv inte upplever som roliga, gjorda.<\/p>\n

Fysiska f\u00f6rm\u00e5gor som l\u00e4gger av<\/h2>\n

N\u00e4r dagens ork \u00e4r slut, d\u00e5 l\u00e4gger kroppen av p\u00e5 ett mycket tydligt fysiskt s\u00e4tt. H\u00f6ger \u00f6ga slutar fungera, balansen blir svajig igen, och s\u00e5 vidare. D\u00e5 \u00e4r det helt enkelt vila som g\u00e4ller och inget annat.<\/p>\n

\"\"<\/p>\n

Ja men det \u00e4r v\u00e4l det. Tydliga funktionshinder som f\u00f6r\u00e4ndrar livet och vardagen, men som \u00e4nd\u00e5 \u00e4r helt funkis att leva med p\u00e5 samma g\u00e5ng. Det \u00e4r bara att anpassa sig till livet g\u00e5ng och nya f\u00f6ruts\u00e4ttningar.<\/p>\n

Alla inl\u00e4gg om Christofers stroke hittar du h\u00e4r.<\/a><\/p>\n

Missa inga inl\u00e4gg, gl\u00f6m inte att gilla 4000mil p\u00e5 Facebook<\/a>.<\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

– Vilken tur att du inte drabbats av n\u00e5gon hj\u00e4rntr\u00f6tthet efter stroken, minns jag att vi sa till varandra ganska tidigt efter stroken. Naivt, dumdristigt eller bara i okunskap. F\u00f6r vi trodde ju d\u00e5 att hj\u00e4rntr\u00f6tthet det var helt enkelt att bli uttr\u00f6ttad av ljud och intryck, att inte orka […]<\/p>\n","protected":false},"author":3,"featured_media":39457,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"categories":[1516],"tags":[1674],"class_list":["post-39653","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-personligt","tag-stroke"],"yoast_head":"\nHj\u00e4rntr\u00f6tthet efter stroke - vad inneb\u00e4r det och hur \u00e4r det att leva med?<\/title>\n<meta name=\"description\" content=\"- Vilken tur att du inte drabbats av n\u00e5gon hj\u00e4rntr\u00f6tthet efter stroken, minns jag att vi sa till varandra ganska tidigt efter stroken. 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